Hearing the diagnosis that you or a loved one has leukemia can be devastating, and dealing well with the emotional aspect of the disease is an important aspect of treatment. Patients and families frequently feel that the only ones who understand what they are going through are those who have 'walked in their shoes.'
At The Rob Branham Foundation, we believe there are some basic steps everyone should take to deal with the emotional aspects of leukemia:
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Find someone who is in the same 'role' you are in to talk to: if you are the patient, find another patient who has the same type of leukemia yo have, or is undergoing the same type of treatment. If you are the spouse of the patient, find another spouse (preferably of the same gender, since wives and husbands often face different issues). If you are the child of a patient, get connected with another patient's child who is approximately the same age as you are. (More below on finding the right people to talk to.)
- Don't be hesitant to ask questions of the doctor or medical team providing treatment....knowing the answers is the first step to dealing with issues that are frightening or confusing. Make lists of questions, and find out how, where, and when you can contact them. (See 'What questions should I ask?' for suggestions.)
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Find an outlet for your frustrations, fears, and other emotions. Talking is one such outlet, as is physical exercise or finding something positive to do that will help you confront and conquer the emotions.
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When people ask what they can do to help, tell them. Take advantage of the support network that can be developed. When friends or family members say "Call me if you need me," call them and tell them exactly what you need. This is the best way to find out to what degree people are ready and able to support you. (See 'Helping out a family' for suggestions.)
There are also several organizations that have established support groups any patient or family member can join, and/or online support offerings. Click on the links below to find out how these groups can help you:
The Rob Branham Foundation - email the RBF to connect with leukemia survivors, spouses, and friends (located in CT)
